Wednesday, July 19, 2017

You have to advocate.....

Hi,

I think sometimes feelings get in the way of what you have to do as an Autism parent.  We have recently had an experience where one of JB's therapist is just not the right fit for JB.  It's actually been quite a fight....But as I told the owner of the ABA company, I absolutely must think of him, must think of his progress, must think of his emotions.

Everybody is different.  Some people have it, some people don't.  I give this therapist a ton of credit as she really did try but......there was no energy for JB.  None. And that is sorta what makes me feel bad....I hate seeing someone removed from a job, especially when they are trying.  But as a parent of a special needs child...it's important to think clearly and fight for my kid.  He cannot fight for himself.

I think learning to be an advocate is super hard.  I think it is so easy to believe that everyone has your child's best interest at heart.  I think they mean well...but in reality, the parent knows the child inside and out.  Your gut really should be listened to.   Your heart should be followed.  I will say that it will not be easy....and yet, easy.  Because speaking for your child should be easy....It's the listeners that need to work at truly hearing.

Mom....Dad.....don't be afraid to speak up.  Ask.....repeat.  Do so because you want to be clear.....your child deserves it and so do you.  You got this!

TTFN
Martha


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